The company’s privacy policy does mention sharing data with research bodies, as authorised by Australian law. But few Australians read and understand privacy policies.
Tim Tenbensel, University of Auckland, Waipapa Taumata Rau and Monique Jonas, University of Auckland, Waipapa Taumata Rau
Using ethnicity as a proxy for need is supported by local and international research. The government’s decision to get rid of it will mean worse outcomes for Māori and Pacific New Zealanders.
During the pandemic, timely and accurate data on COVID-19 infectivity rates among different ethnic and racialized groups were insufficient.
THE CANADIAN PRESS/Chris Young
The COVID-19 pandemic showed that a one-size-fits-all approach is inadequate for addressing health inequities. A targeted, community-informed strategy is essential to improve public health responses.
Despite ongoing oppression by the settler state, the Red River Métis are often overlooked in federal settlement agreements involving Canada’s colonial past.
(Shutterstock)
Now more than ever we need Red River Métis health data that is conducted ethically and is respectful of both individual and collective rights, and accurately represents our distinct population.
In 2022 the top five conditions involved in deaths in Australia were coronary heart disease, dementia, high blood pressure, cerebrovascular disease (such as a stroke) and diabetes.
We don’t know much about the nature of this large-scale ransomware attack. But it’s not entirely surprising – health data is a prime target for cybercrime.
Now is the time to learn from the COVID-19 response through an action-oriented independent inquiry focused on accountability. Reforms to data generation, access and use are essential.
Some 90% of Australians have a My Health Record. But even if it has health information stored on there, it might be less than informative and rarely referred to.
While statistics tell us the proportion of Aboriginal and Torres Strait Islander people with cancer who die is increasing, the reality is likely worse.
Support for use of health data is conditional on whether the use has public benefits.
(Brittany Datchko/Graphic Journeys)
There are concerns about how health data are used, but research shows support for uses with public benefits by health-care providers, governments, health-system planners and university-based researchers.
US health data pioneer Ernest Codman at work on his national registry of patient outcomes, 1925.
Roy Mabrey/Boston Medical Library
A type of computer chip that mimics both the skin and brain could pave the way for wearable devices that monitor and analyze health data using AI right on the body.
The brain can count small numbers or compare large ones. But it struggles to understand the value of a single large number. This fact may be influencing how people react to numbers about the pandemic.
Cellular phones track and reveal owners’ movements, generating useful data for pandemic tracking.
(Shutterstock)
In order to track the pandemic, the Public Health Agency of Canada has been using location data without explicit and informed consent. Transparency is key to building and maintaining trust.
Professor (adjunct) and Senior Fellow, Institute for Health Policy, Management and Evaluation, Dalla Lana School of Public Health, University of Toronto
Honorary Enterprise Professor, School of Population and Global Health, and Department of General Practice and Primary Care, The University of Melbourne